HIV, Syphilis and Sexually Transmitted and Blood-Borne Infections (STBBI) Awareness and Perceptions Survey

Executive Summary

Prepared for: Health Canada

Supplier: The Strategic Counsel
Contract number: CW2334131
Contract value: $149,999.31
Contract award date: 2023-10-16
Delivery date: 2024-03-06

Registration number: POR-23-23 / POR-067-23

Aussi disponible en français sous le titre Enquête sur la sensibilisation et la perception du VIH, de la syphilis et des infections transmissibles sexuellement et par le sang (ITSS)

This publication may be reproduced for non-commercial purposes only. Prior written permission must be obtained from Health Canada. For more information on this report, please contact Health Canada at hc.cpab.por-rop.dgcap.sc@canada.ca or at:

Health Canada, CPAB
200 Eglantine Driveway, Tunney's Pasture
Jeanne Mance Building, AL 1915C
Ottawa, Ontario K1A 0K9

Catalogue Number:
HP40-361/2024E-PDF

International Standard Book Number (ISBN):
978-0-660-71163-8

Related Publication (Registration Number: POR-067-23

Catalogue Number: HP40-361/2024F-PDF (Final Report, French)

International Standard Book Number (ISBN): 978-0-660-71164-5

©His Majesty the King in Right of Canada, as represented by the Minister of Health, 2024.

Table of Contents

Executive Summary

A. Background

A core principle of the Public Health Agency of Canada's (PHAC) is to protect people in Canada from infectious diseases by predicting, detecting, assessing and responding to outbreaks and new threats. Additionally, PHAC contributes to the prevention, control and reduction of the spread of infectious disease among the public.

Recent outbreaks of syphilis are a major public health concern, particularly among key populations with higher vulnerability to acquiring sexually transmitted and blood-borne infections (STBBI), including Indigenous communities, gay, bisexual and other men who have sex with men (gbMSM), youth and young adults across Canada, due to compounding issues such as a higher likelihood of exposure, systemic barriers, and higher-risk behaviours. The Government of Canada is committed to accelerating prevention, diagnosis and treatment to reduce the health impacts of STBBI, including syphilis, in Canada by 2030 as highlighted in the Government of Canada Five-Year Action Plan on STBBI. Key priorities included in the Action Plan are to:

As part of its commitment to the global goal of ending HIV and AIDS as a public health concern by 2030, the Government of Canada is committed to meeting global 95-95-95 targets by 2025 – 95% of all people living with HIV know their status, 95% of those undiagnosed receive antiretroviral treatment and 95% of those on treatment achieve viral suppression. At the end of 2020, an estimated 62,790 people were living with HIV in Canada. Among those living with HIV, an estimated 90% were diagnosed. Of those diagnosed, 87% were estimated to be on treatment and 95% of persons on treatment were estimated to have a suppressed viral load. In other words, 16,690 individuals did not attain viral suppression and were still at risk of transmitting HIV due to a lack of access and uptake of effective HIV prevention, testing and treatment options. In the same year, an estimated 1,520 new HIV infections occurred in Canada.

Despite ongoing efforts, several key populations continue to face systemic barriers when trying to access health services, including: lack of awareness and knowledge surrounding HIV, limited access to cultural and linguistically appropriate services, and fear and stigma surrounding HIV. Additionally, widespread misconceptions about HIV transmission and what it means to live with HIV today, along with a lack of information and awareness around HIV and old beliefs continue to create fear, negative ideas and stereotypes around people who are affected by, and vulnerable to HIV. Stigma and discrimination can increase vulnerability to HIV by affecting self-esteem, social support networks and mental health as highlighted in both the Government of Canada Five-Year Action Plan on STBBI and the Chief Public Health Officer's 2019 and 2021 Reports.

Concerns about discrimination by health care providers and negative experiences with the health care system are also barriers to accessing health services generally, as well as for HIV testing and treatment. Fear of disclosure and rejection, feelings of shame, isolation, and despair related to internalized stigma can also keep people from getting tested and treated for HIV. This stigma also extends beyond healthcare as people may worry about disclosing their infections to their family or community out of fear of rejection or exclusion.

Across Canada, syphilis remains a public health threat with rates of infectious syphilis rapidly increasing over the last several years (109% from 2018 to 2022). These increases have also caused the re-emergence of congenital syphilis due to untreated syphilis among pregnant people. In 2022, 117 cases were reported compared to 17 in 2018, representing an increase of 599%. Several factors impact the rates of syphilis in Canada, including poverty, housing instability, risk behaviours (such as unprotected sex and substance use), racism, stigma and discrimination within health systems, and challenges with access to care. Additionally, some reported risk factors associated with maternal or congenital syphilis, include having inadequate or no prenatal care. Overall syphilis cases are preventable with increased awareness, access to appropriate early interventions, testing and treatment. In supporting the global goal of ending syphilis as a public health concern by 2030, the Government of Canada is committed to working with partners and stakeholders across the country to address the rising rates of syphilis.

B. Research Objectives

1. Purpose

The primary objective of this research is to establish a baseline level of awareness and identify barriers to access among people in Canada aged 16 and over, and those at the highest risk of contracting STBBI.

2. How the Research Will Be Used

The research findings will be used to measure baseline levels of awareness which will subsequently inform the need for and the type of continued awareness raising efforts, as well as identify gaps in knowledge, barriers to care, and areas where engagement with various stakeholders can be strengthened to advance government priorities related to STBBI.

Additionally, the research findings will help guide future communications, advertising, and marketing activities for STBBI to ensure that they reach and resonate with at-risk and priority populations.

3. Objectives

Specific objectives for this research study were to:

C. Methodology in Brief

An online methodology was undertaken to complete this research study, utilizing an online panel of the Canadian public, aged 16+, as well as an online panel of medical professionals.

A 15-minute online survey was administered to 3,100 Canadians, aged 16 and older and 250 health care professionals.

The sample for this study was segmented into two: general public and health care professionals.

Monitoring was undertaken while the survey was in field in order to ensure quotas were met. For the general public, a disproportionate sampling plan was employed, including oversampling in Atlantic Canada and the Prairies to ensure sufficiently robust samples in these areas to be able to analyze the results within and between regions. Additional quotas were set by age to ensure good representation from younger people in Canada. A weighting scheme was applied in order to bring the final sample back into line with the distribution of the population in Canada, by regionFootnote 1. For health care professionals, no weighting was applied to the sample.

Given the reliance on a commercial online panel as the primary methodology, the study utilized a non-probability approach to sampling. As such, a margin of error cannot be applied to the final sample and no inferences can be made to the broader target population. The fieldwork was conducted between November 3rd and November 23rd, 2023.

D. Total Contract Value

The total value of the contract to undertake this study, including HST was $149,999.31.

E. Note to readers

The design of the general public survey included oversampling of specific communities (e.g., Black, Indigenous, and 2SLGBTQI+ communities). As relevant, notable findings for these target audiences are also presented below as relevant and contrasted with the results for the general public as a whole. A more focused analysis of these target audiences is also included at the end of each section following the detailed results applicable to the general public sample. All differences highlighted are statistically significant at the 95% confidence level. It should also be noted that where cell sizes for analysis were quite small (i.e., fewer than 50 respondents), further demographic and regional analysis was not undertaken.

Analysis of findings from the survey of health care practitioners was also undertaken focusing on key differences across professions and by professional setting based on statistically significant differences at the 95% confidence level. However, given the small sample size overall, and thus even smaller numbers at the sub-cell level, these findings should be considered more directional in nature. For the most part, where cell sizes fell below n=30, any differences by profession, professional setting, region or across demographic sub-groups (e.g., gender and age of practitioner) are not reported.

As relevant, comparative data from the general public and health care practitioners' surveys are discussed. However, some caution should be taken in interpreting these results given the relatively small sample of health care practitioners.

In some cases, results may not add up to 100% due to rounding. Results have been rounded based on the tenth decimal point (e.g., 24.51% has been rounded up to 25% whereas 24.49% has been rounded down to 24%).

F. Key Findings

Overarching themes and highlights from this study are outlined below for each of the two main audiences who were surveyed: the general public and health care practitioners. Given that both audiences responded to a set of core questions related to concerns, experiences, and perceived stigma and barriers regarding sexually transmitted and blood-borne infections, results are examined among and across the two audiences to allow for a comparative analysis of responses.

Concern about STBBI Relative to Other Public Health Issues

General Public

Health Care Practitioners

The table below shows a side-by-side comparison between health care practitioners and the general public regarding their concern for various public health issues. It is notable that overall levels of concern, and specifically those saying they are very concerned, are much higher among health care practitioners in all cases with one exception – the proportion of health care practitioners who say they are very concerned about HIV/AIDS is just 6-points higher than that reported by the general public (as shown in the column highlighting the difference in ratings between the two audiences).

TABLE 1. LEVELS OF CONCERN ABOUT VARIOUS PUBLIC HEALTH ISSUES – COMPARISON BETWEEN GENERAL PUBLIC AND HEALTH CARE PRACTITIONERS
  % Concerned
(Very/Somewhat)
% Very Concerned
General Public Health Care Practitioners Difference* General Public Health Care Practitioners Difference*
n= 2500 250   2500 250  
Mental illness and suicide among children and youth 85 97 +12 57 75 +18
Mental illness and suicide among adults 84 98 +14 52 78 +25
The opioid crisis (drug use, overdose, addiction) 78 96 +18 48 75 +27
E-cigarette use and vaping among children and youth 77 96 +19 45 72 +27
Obesity 71 98 +27 30 68 +38
Tobacco and alcohol use 65 94 +29 26 48 +22
E-cigarette use and vaping among adults 59 89 +30 24 45 +21
Rates of HIV/AIDS 48 74 +26 17 23 +6
Rates of syphilis infection 42 73 +31 14 30 +16

Knowledge of and Interest in Information about STBBI (General), HIV/AIDS and Syphilis

General Public

Health Care Practitioners

At Risk' Groups for HIV and Syphilis

General Public

Health Care Practitioners

Stigma and Barriers Affecting Access to Services and Supports

General Public

Health Care Practitioners

Awareness of the Concept of 'Undetectable=Untransmittable'

General Public

Health Care Practitioners

G. Conclusions and Recommendations

Based on the findings from this study, there are clear opportunities to raise awareness among the general public about issues related to HIV/AIDS and syphilis. In particular, there is an urgent need to educate people living in Canada about rising rates of HIV and syphilis as well as prevention, testing and treatment. Given that overall knowledge regarding syphilis is much lower, as compared to HIV, a focus on the former should be a priority. Any initiatives should also address various stigma and barriers which could inhibit 'at risk' or affected individuals from seeking care. While some of these barriers require a policy response (i.e., lack of access to medical care), others could be tackled via effective communications, education and community outreach to key populations, including 2SLGBTQI+, Indigenous Peoples and the Black community. Development of communications strategies should consider the following:

A segment of health care professionals could also benefit from additional information, tools and resources to both enhance their understanding with ongoing and up to date epidemiological data (especially regarding rates of HIV/syphilis, vulnerable populations, treatments for HIV, and to some extent, testing and treatments for syphilis) and dispel any ongoing misperceptions. Dentists and pharmacists are a priority target audience in this regard, although the generally trusted relationship between general practitioners/nurses and their patients should not be overlooked. Specifically, more education is warranted among health care practitioners on STI screening practices, notably, that screening for syphilis is typically not included in regular screening for STIs. Online approaches (e-learning, webinars) in addition to working with and through professional organizations are preferred.

Very few among the general public are aware of the 'U=U' concept. Awareness could also be enhanced among health care practitioners who are highly supportive of communicating this message but do not necessarily do so themselves on a regular basis. Promoting this message may also contribute to the normalization of HIV/AIDS among a series of other common health care concerns.

MORE INFORMATION

Supplier Name: Strategic Counsel
PWGSC Contract Number: CW2334131
Contract Award Date: 2023-10-16
Contract Budget: $149,999.31

To obtain more information on this study, please e-mail por-rop@hc-sc.gc.ca

Statement of Political Neutrality

I hereby certify as Senior Officer of The Strategic Counsel that the deliverables fully comply with the Government of Canada political neutrality requirements outlined in the Policy on Communications and Federal Identity and the Directive on the Management of Communications.

Specifically, the deliverables do not include information on electoral voting intentions, political party preferences, standings with the electorate or ratings of the performance of a political party or its leaders.

Signed:
Donna Nixon, Partner
The Strategic Counsel